Institute for Patient-Centered Design, Inc.

"The one thing that brings us the most comfort now is helping other families during their own journeys.  That is why we have shared our son’s journey and the difficult path we have undergone.  We know how it feels to be in the hospital for months on end during the most difficult time of our life.  We know what others take for granted, the small comforts of home lost in the hospital, the isolation and desperation parents feel while hospitalized, and the total overwhelming emotional, physical, and mental exhaustion that parents endure.  We want to educate others on the small steps that can be taken to comfort these families and caregivers.  We will honor the memory of our son Hendrix, by helping other families that have to walk down a similar path.  We hope with the help of others, that in the future, more families will get the opportunity to end their personal journeys in a different manner.  We hope they will get to 'Enjoy Life'."